From Diagnosis
to Dedication,
meet Jeff.
Since my son Lucas's CTD diagnosis, I've dedicated my life to advocating for families affected by rare diseases. What started as a personal battle has evolved into a mission to create lasting change in the rare disease community.


Guided by Purpose
We’re here to inspire people, by example, to take purposeful action in helping children with rare diseases.
Values we live by
- We hear what you're going through
- When it comes to inspiring action, be creative
- Have the courage to fight for what's right
- You only lose if you quit



Guided by Purpose
Share the message of hope, action, and resilience with your audience. Available for speaking engagements about rare disease advocacy, family empowerment, and turning challenges into purpose.
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